Promoting and Protecting Human Rights in relation to Sexual Orientation, Gender Identity and Sex Characteristics
A Manual for National Human Rights Institutions
4.3.3. Female genital mutilation
NGOs in both Australia and New Zealand have made submissions to government agencies, NHRIs and
UN treaty monitoring bodies criticising laws that, while rightly prohibiting female genital mutilation, allow
similar surgical interventions on intersex girls.288 In both countries, relevant laws exempt so-called ‘sexnormalising’ surgeries on intersex people because they are regarded as being medically beneficial or
therapeutic.289 This is despite explicit provisions stating that a procedure cannot be justified as necessary,
desirable or therapeutic simply because it is part of a social, cultural or religious custom or practice. The
NGOs OII Australia and the Intersex Trust Aotearoa New Zealand have argued that surgical alterations
to make intersex children’s genitals ‘normal’ or ‘socially acceptable’ amount to genital mutilation and
should be legally prohibited.290
Human rights concerns about genital surgeries on intersex infants and children, performed for nonmedical reasons, are noted in the 2015 report of the High Commissioner for Human Rights on female
genital mutilation. They appear in a section highlighting constraints and challenges that States face in
their efforts to meet their obligations to respect, protect and fulfil the rights of women and children to live
free from female genital mutilation.291
4.3.4. Defining intersex variations as serious genetic disorders
‘Preimplantation genetic diagnosis’ refers to the process of screening embryos for specific genetic
diseases before implanting them in a uterus. The ethics of preimplantation genetic diagnosis to select
against intersex traits was the subject of 11 papers in the October 2013 issue of the American Journal
of Bioethics.292 A May 2015 report from the Commissioner for Human Rights of the Council of Europe
raised concerns that the use of this procedure to identify and reject embryos with intersex variations
violates ethical and human rights standards.293
In April 2014 and September 2015, OII Australia made submissions to Australia’s National Health and
Medical Research Council calling for the prohibition of genetic testing to select against intersex traits.294
It criticised the assumption that intersex variations are “serious genetic conditions”, identifying this as the
underlying rationale for preimplantation diagnosis. OII Australia recommended that testing and diagnosis
should be limited to instances where a major physical or mental impairment may severely limit a person’s
quality of life.
4.3.5. Continuing health issues for intersex people
There are often lifelong physical and emotional implications that follow surgeries and other medical
interventions performed on intersex children and infants. These can include sterility, genital insensitivity
and impaired sexual function, chronic pain, bleeding or infections, post-surgical depression or trauma
(including in response to experiences of rape), significant scarring and metabolic imbalances.295
74
288
For example, OII Australia, Submission to the Australian Human Rights Commission: Sexual Orientation, Gender Identity and
Intersex Rights Snapshot Report, February 2015; Intersex Trust Aotearoa New Zealand, Alternate NGO Submission on the sixth
periodic report to the United Nations on the Convention against Torture and Other Cruel, Inhuman or Degrading Treatment or
Punishment from New Zealand, January 2015.
289
New Zealand Crimes Act 1961, s. 204A; Attorney General’s Department, Review of Australia’s Female Genital Mutilation Legal
Framework – Final Report, 2013.
290
This argument directly challenges the psycho-social rationale that surgeries are necessary to improve opportunities for marriage
or intimate relationships.
291
OHCHR, Good practices and major challenges in preventing and eliminating female genital mutilation, 2015, A/HRC/29/20, para.
62 .
292
American Journal of Bioethics, Vol. 1 Issue 1, 2013.
293
Commissioner for Human Rights of the Council of Europe, 2015, p. 30.
294
See https://oii.org.au/29939/nhmrc-genetic-selection-intersex-traits/.
295
M. Cabral and M. Carpenter, 2015.
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