Human rights
Data and research
• The connection between international human
rights frameworks and the realisation of domestic
human rights must be understood by all who are
working to improve the lives of intersex people in
Aotearoa New Zealand.
• The Roundtable participants agreed that
mandatory reporting is needed on the instances
of medical interventions on intersex children
in Aotearoa New Zealand. It was agreed that
a national health database is needed to hold
good data while providing appropriate privacy
provisions. The database must be adequately
resourced.
Collaboration
• More collaboration is needed across all sectors
around the country working with intersex people
with a focus on self-determination rather than
prescriptive and differing advice. A national
clinical network would provide a central point of
communications and policy development.
• The work we do in Aotearoa New Zealand must
be part of the global conversation about how
to improve the lives of intersex people and their
families/whānau.
• The voices of intersex people and their whānau
must be central to policy development, legislative
changes and medical developments. The
Roundtable affirmed the saying “Nothing about
us without us” in support of intersex voices in
decision making and movement building.
• The voices of young people must be heard in
these discussions if a child-centered approach is
to be truly realised. This also builds succession
planning into our advocacy and creates
leadership opportunities for intersex people.
Decolonisation and breaking the
gender binary
• Evidence presented in case studies at the
Roundtable acknowledged that the enforcement
and presumption of the gender binary and
Western constructions of gender can be
problematic. This presumption can be insensitive
to cultural constructs and understandings.
Language
Education
• Continued collaboration is needed between
tertiary education providers to raise the profile
of the level of appropriate health care expected
for intersex people and their whānau in Aotearoa
New Zealand.
• Continued efforts are also needed to engage
medical professionals and support services in
ongoing professional development in this area.
National Clinical Network
• The Roundtable participants discussed the offer
from the Ministry of Health to fund a national
intersex clinical network through the Pediatric
Society of New Zealand.
• The benefits and risks of this offer were discussed
at length and a suggested framework for a
network was agreed upon.
• Recommendations by the Roundtable on how the
network could operate have now been approved
by the Pediatric Society of New Zealand.
• The advertisement for expressions of interest,
including details of the scope of the network,
have been included as Appendix 4.
• Expressions of interest were sought through
the Pediatric Society of New Zealand with the
network’s first meeting scheduled for May 2018.
• The Roundtable agreed that consistent and
strengths-based language is important when
discussing the needs and identities of intersex
people. The group encouraged the use of “sex
variations” instead of “sex differences”.2
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Human Rights Commission