It is clear that deinstitutionalization is necessary to ensure the human rights of persons
with disabilities because it is necessary to guarantee the right to choose a place of residence
for persons with disabilities who do not wish to live in support facilities and have the ability
to live alone. Amidst social confrontation, it is necessary to reach a consensus through
communication and efforts and to promote deinstitutionalization policies.
2) Issues with the System that Protects the Rights of the People with
Developmental Disabilities
A) The Problem of Caring for People with Developmental Disabilities Passed on to
the Families
As of Dec. 2021, the registered number of people with developmental disabilities was 25.5
million, an increase of about 2.2 million compared to 2018. The number of people with
developmental disabilities are increasing each year, but the problems arise due to the
absence of a system that protects the rights systematically. The people with developmental
disabilities need assistance of other in daily lives and communications, and the families bear
this burden often times.
According to the ‘2021 survey on the status of the people with developmental disabilities’
released by the Ministry of Health and Welfare in Sep. 2022, most people with
developmental disabilities need help from others in daily life and communication. 22.5%
needed help in all daily activities, 18.2% needed help most of the time, and 29.8% needed
help in some ways. 18.4% were almost impossible to communicate, 16.2% were able to
communicate with a lot of help, and 26.9% were able to communicate with some help.
However, parents accounted for 67.6% of the people who mainly helped people with
developmental disabilities in daily lives, followed by siblings (8.0%), spouses (6.8%), and
visiting caregivers (4.5%). 9.1% of the people with developmental disabilities responded
that the help of others in their daily lives was ‘very lacking,’ and 40.7% responded that they
were ‘insufficient.’ Parents (50.4%) were also the most important decision-makers in daily
lives, which is a larger number than on their own (28.6%).
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