Part I The concepts: The human rights framing of disability
2.5. SOCIAL SUPPORT: CALIBRATING ECONOMIC AND SOCIAL
RIGHTS TO UNDERPIN THE AUTONOMY
Social support has seldom provided the right kinds of support to persons with disabilities in the past.
Indeed, our social protection/welfare systems have tended to ‘cushion’ persons with disabilities – and
even then not very effectively – from the mainstream. These systems were not premised on the notion
that persons with disabilities would want to live an active and productive life.
The ‘social support’ approach to disability dominated our recent past. Most people viewed this as
normal and ‘the right thing to do’. Reframing public opinion to place the focus on the rights of people
with disabilities and to promote their inclusion in all aspects of community life is challenging for many
people. However, it is vitally important and NHRIs have a huge role to play in helping shift community
attitudes.
The need to reframe the social support paradigm is doubly important because of the close link between
disability and poverty. We know that persons with disabilities are more likely to be poor and that poorer
people are more likely to become disabled. The UN CRPD acknowledges that “the majority of persons
with disabilities live in conditions of poverty” and notes the “critical need to address the negative impact
of poverty on persons with disabilities”.74 Indeed, some 80 per cent of persons with disabilities live in
developing countries.75
Disability increases the risk of poverty. This is because persons with disabilities face significant
disadvantage in securing an adequate income through paid employment (an income penalty). It is also
because persons with disabilities face extra costs related to their impairments or health condition and
to overcoming the barriers they face when seeking to participate fully in society (a cost of living penalty).
The extra costs faced by persons with disabilities are often not taken into account in general measures
to alleviate poverty.
The main route out of poverty – paid employment – is largely closed to persons with disabilities. People
with disabilities are more likely to be unemployed than non-disabled people. In OECD countries, the
employment rate of people with disabilities (44%) hovers around half that for people without disabilities
(75%).76 People with intellectual disabilities and mental health problems experience the greatest
disadvantage.77 Internationally, the average employment rate of women with disabilities is less than half
that of men with disabilities.78
However, the way social rights were delivered in the past almost assumed the non-presence of persons
with disabilities in the workplace. They were, instead, ‘compensated’ for their absence. Further, to
remain entitled for these payments, many people with disabilities had to impoverish themselves by
divesting themselves of any assets they were fortunate enough to inherit or acquire. The overall effect
was that by the time the UN CRPD was being drafted, economic and social rights were seen by many
as part of the problem rather than part of the solution.
The shift to the human rights frame, therefore, has significant implications for the design and delivery
of social rights programs and entitlements. On close analysis, it is clear that the drafters of the UN
CRPD were prepared for this challenge. That is why many of the rights contained in the substantive
provisions of the Convention blend a fundamental right – for example, freedom of expression – with
socio-economic rights, supports and obligations to help secure that right in practice for people with
disabilities. This can make life a bit difficult for advocates, lawyers and NHRIs alike since the rights and
obligations in the Convention do not come neatly packaged into those that are ‘immediately achievable’
74
Preambular paragraph (t).
75
WHO, World Report on Disability, 2011; available at www.who.int/disabilities/world_report/2011/en/.
76
Ibid.
77
Ibid.
78
WHO, World Health Survey 2002–2004; available at www.who.int/healthinfo/survey/en.
Chapter 2: Key elements of the human rights frame on disability | 29