PRISM: Human Rights issues relating to Sexual Orientation, Gender Identity and Expression, and Sex Characteristics (SOGIESC)
in Aotearoa New Zealand - A report with recommendations
diagnosis and full treatment history, while others
are not. 242 Surgical interventions on healthy
tissue can result in sterilisation, scarring, pain,
trauma, reduced function and sensation of sexual
organs, and loss of fertility or potential fertility
complications.243 International literature shows
that delaying medical interventions until a person
is old enough to participate in decision-making
processes about their body has positive effects
on psychosocial outcomes.244 Genital-normalising
surgeries are usually performed when an intersex
person is an infant; too young to be part of the
decision-making process.
The intersex human rights movement seeks to end
non-life preserving surgical interventions where
they can be deferred until a person is old enough
to decide for themselves. That is, either at the age
of 16 years; or for a child younger than 16, when
they have sufficient maturity and intelligence
to understand the nature and implications of
treatment.245 In its General Comment No. 20 on
the rights of the child during adolescence, the
UN Committee on the Rights of the Child stated
that, “[t]he voluntary and informed consent of the
adolescent should be obtained whether or not the
consent of a parent or guardian is required for any
medical treatment or procedure.”246 Therefore,
consent of the parent for surgery cannot be
considered as the consent of the child.
This is not an ‘anti-surgery’ position; medical
procedures can be justified in cases of conditions
that pose a health risk or are considered lifethreatening, such as when an infant is unable to
urinate.247 The World Health Organization (WHO)
states that, “parents often consent to medical
intervention for their children in circumstances
where full information is lacking and without
any discussion of alternatives.”248 WHO has
documented the call for deferment of intersex
genital surgeries until the individual is old enough
to make decisions for themselves.249
Intersex participants at the Commission’s hui
noted that the historic harm done by health
professionals to intersex people in New Zealand
has not been acknowledged to date.250 Further,
there is no medical reparation available, as a
form of retrospective justice, for those who
have been surgically or otherwise altered. The
surgical practice of genital normalisation has
been described as torture and condemned by the
United Nations as a grave violation of the rights to
bodily integrity, bodily autonomy, and privacy.251
New Zealand’s practices have also been identified
as a failure to meet our obligations under the
Convention on the Rights of the Child.252
The Committee on the Elimination of
Discrimination Against Women, during its 2018
review of New Zealand, expressed concern about
“the conduct of medically unnecessary procedures
United Nations Office of the High Commissioner for Human Rights Background Note on Human Rights Violations against Intersex
people (October 2019) at 3: The root causes of human rights violations against intersex people include harmful stereotypes, stigma,
taboos, and pathologization (i.e. treating intersex persons as necessarily ill or disordered).
243
Milton Diamond and Jameson Garland “Evidence regarding cosmetic and medically unnecessary surgery on infants” (2014) 10
Journal of Pediatric Urology p2. See also New Zealand Human Rights Commission Intersex roundtable report 2016: The practice
of genital normalisation on intersex children in Aotearoa New Zealand (Wellington, 2016); New Zealand Human Rights Commission
Intersex roundtable report 2017: Ending the practice of genital normalisation on intersex children in Aotearoa New Zealand (Wellington,
2018).
244
Katrina Roen “Intersex or diverse sex development: Critical review of psychosocial healthcare research and indications for practice”
(2019) 56 The Journal of Sex Research p511.
245
This is often referred to as ‘Gillick competence.’ See Richard Griffith “What is Gillick competence?” (2016) 12 Human Vaccines &
Immunotherapuetics p244.
246
Committee on the Rights of the Child General comment No. 20 (2016) on the implementation of the rights of the child during
adolescence UN Doc CRC/C/GC/20 (6 December 2016) at [39].
247
United Nations Office of the High Commissioner for Human Rights Background Note on Human Rights Violations against Intersex
people (October 2019) at 10.
248
World Health Organization Sexual health, human rights and the law (Geneva, 2015) at 26.
249
Ibid at 17 and 27.
250
New Zealand Human Rights Commission Stakeholder Engagement Meeting Notes: Sexual orientation, gender identity, and sex
characteristics (SOGISC) consultation (Auckland, 13 February 2018).
251
Juan E. Méndez Report of the Special Rapporteur on torture and other cruel, inhuman or degrading treatment or punishment UN Doc A/
HRC/22/53 (1 February 2013).
252
Committee on the Rights of the Child Concluding observations on the fifth periodic report of New Zealand UN Doc CRC/C/NZL/CO/5 (21
October 2016) at [25(b)]-[25(e)].
242
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