Report of the Conference • Best interest of the child is often determined and assessed by culturally-rooted assumptions which include ideas about bodies and notions about normality. Consent • Using the disability lens, there are concerns regarding the concept of consent – what does consent imply? • There is inadequate clarity on the concept of access to medical interventions when a person consents and desires it – which may not be clear cut in many cases • Supplementary principles could be expanded to include harm caused and, in particular, draw attention to the distinction between consent and informed consent • Education and information should be expanded through the engagement of the community, interested populations, medical community and other state agencies. Gender identity • Principle 18 assumes gender identity as a rationale for intervention and assignment of gender identity – but there are no other reasons for intervention, which is problematic • This link established by the Principles between gender identity and medical intervention is too narrow. Access to information • There is inadequate access to information and there is a dearth of research, data and records regarding prevalence, experiences and outcomes – this issue needs to be given consideration in the programmatic action • More focus should be given to how we collect information, testimony, academic articles published by doctors. 25