Disability data A lack of quality disaggregated data about disability is a critical issue for realising better outcomes for disabled people. The Commission advocates for better data collection across all its disability priorities to all relevant stakeholders. The Commission is an active partner with Statistics New Zealand and the ODI in the development of a measurement framework to better track improvements for disabled people. The Commission has provided funding and resource for a gap analysis to map potential indicators under the Outcomes Framework, which supports the New Zealand Disability Strategy. This work informed a Cabinet paper which sought Cabinet approval for further work to create a durable set of indicators and measures that will guide agencies in their data collection. Disability Action Plan The Commission provided input into the ODI draft Cabinet paper, Convention, Strategy Outcomes Framework, Disability Action Plan Progress Report, and development of the new Disability Action Plan. Intersex Clinical Reference Group The Commission was accepted as one of 12 members of the Intersex Clinical Network Reference Group, run by the Paediatric Society of New Zealand (PSNZ). The group is funded by the Ministry of Health (MoH) and aims to improve health practices, systems and approaches for intersex children and youth up to 18 years of age by advising PSNZ and MoH on appropriate services. The group will operate for two years and develop definitions of intersex, undertake a stocktake of current resources and training, investigate current methods of data collection, develop national referral pathways, and ultimately make recommendations to PSNZ and MoH. The Commission brings a strong human rights perspective to the group, with a focus on the rights of the child and based around informed consent and ending non-consensual, non-life saving surgeries on intersex infants and youth. Transgender prisoners The Commission has an ongoing relationship with the Department of Corrections to advance the rights of transgender prisoners. In March, Corrections released the new Management of Transgender Prisoners’ policy. Guidance and training have been developed for frontline staff to educate them on the unique issues faced by transgender prisoners in Corrections’ custody. The policy had been in development for a number of years, and the Commission had made a substantial submission, which was heavily drawn from for the final document. Annual Report 2018 19

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