ABORIGINAL AND TORRES STRAIT ISLANDER-LED TRANSFORMATION
PHOTO: Professor Gracelyn Smallwood, Adam Hennessy, Scott Wilson and Nash Wall presenting back to
the group at the first Lived Experience Centre gathering in Cairns, Queensland
The Centre’s yarning circles
have supported Gayaa Dhuwi’s
development of the revised National
Aboriginal and Torres Strait Islander
Suicide Prevention Strategy, and it is
working with the National Aboriginal
Community Controlled Health
Organisation (NACCHO) on aligning
lived experience with the rollout of
local suicide prevention networks
through NACCHO affiliates.
For Leilani and Vicki, one of the Lived
Experience Centre’s biggest strengths
is its ability to stand strong when
mainstream mental health and suicide
prevention organisations or agencies
work with Aboriginal and Torres Strait
Islander peoples. It enables them “to
speak our truth, when systems and
structures are failing our communities
and families,” Vicki said.
“Most importantly, the key message
that the Centre drives home is that
all engagements with our people and
communities must be meaningful
and purposeful,” she says. “We are
very serious about the work we do,
we don’t want anyone thinking they
can just call on us as tokenistic
representation.”
Through strong co-design, the Lived
Experience Centre has developed
a universal definition of Aboriginal
and Torres Strait Islander people’s
lived experience in mental health and
suicide prevention.
The Lived Experience
Centre’s definition of
Aboriginal and Torres Strait
Islander people’s lived
experience is:
“A lived experience recognises
the effects of ongoing negative
historical impacts and or
specific events on the social
and emotional wellbeing
of Aboriginal and Torres
Strait Islander peoples. It
encompasses the cultural,
spiritual, physical, emotional
and mental wellbeing of the
individual, family or community.
This definition is now informing
national suicide prevention efforts
through its inclusion in the National
Suicide Prevention Advisor’s Final
Advice and the National Lived
Experience Workforce Guidelines
released recently by the National
Mental Health Commission.
Amid all this progress, Leilani said
the Lived Experience Centre has
made sure it takes the time to listen
to, learn from and be present with
its networks, stakeholders and
communities “because this work
hadn’t been done before, we didn’t
know enough about it and we wanted
to get it right”.
People with lived or living
experience of suicide are those
who have experienced suicidal
thoughts, survived a suicide
attempt, cared for someone
through a suicidal crisis, been
bereaved by suicide or having
a loved one who has died by
suicide, acknowledging that
this experience is significantly
different and takes into
consideration Aboriginal and
Torres Strait Islander people’s
ways of understanding social
and emotional wellbeing.”9
Transforming Power: Voices for Generational Change
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